Monday, February 21, 2011
I saw my endocrinologist today for my six month check up and the news is largely positive. I also saw the clinic dietitian and nurse practitioner at the VGH Diabetic Center which I wasn't thrilled about but the nurse was helpful as always and they loaded me down with free samples of Dextro. As usual my visit with the dietitian was as useless as a hangman at a witch burning and almost as unpleasant as both. If I never meet another condescending and smug dietitian it will be too soon.
I am now starting rapid acting insulin before my evening meal and will continue to use NPH, slower acting, insulin before I go to bed every night. Consequently more injection's and even stricter monitoring will be required as the margin for error gets smaller as I refine my dosages and the need to be vigilant against hypoglycemia is a scary reality.
I had a long and involved discussion with the doctor about needing some advocacy with MSP and/or the maker of Liraglutide as I cannot pay the $300 a month required for the prescription. It would mean yet another injection everyday but apparently I am a very suitable candidate for its use especially with my recent news of my steatohepatitis but the provincial drug plan will not cover the cost. I have no doubt that over the progression of my condition I will cost the tax payers hundreds of thousands of dollars and all sorts of people will get paid and the big wheels will keep on turning. I also suspect the cost of denying me the drug will be compounded ten fold when I approach the end game of diabetes with blindness, limb loss or stroke and the associated care costs but the edicts of a false economy continue to be the rule.
The doctors have praised me for my continued compliance with being free of cigarettes for almost two years, massive dietary changes that are reflected in hard facts with my 1AC levels being averaged at 7.1 and my ability to advocate for what I need but the complications keep coming. My bad days now out number my good days and my world continues to get smaller due to poor mobility. My eyesight is still okay but I do need a new pair of glasses and I hope the Ministry will be able to help with the cost.
I have one more specialist appointment this month with the UBC Sleep Disorder Clinic to verify my need for a CPAP machine and hopefully I can get a new one to replace the ailing older model I have that is on it's last legs. My last machine cost me slightly more than $2500 and add to that the cost of the my surgery for my throat and the cost of a good nights sleep is a steep hill to climb...
The cost of a the bullet to end all this comes in at under a dollar but I like to think that I still have something to offer the world and that the race to the finish is still worth running. So next time you see me say hi and tell me your truth because time has suddenly become a very precious commodity that shouldn't be wasted with banality.
at 2:00 PM
Tuesday, February 15, 2011
It has been a month and some days since I was last here at Wouldn't Mind Dying so here is the update in the mostly happier aspects of my existence. I have been busy making music in the new year and must admit to hearing that all the new songs share a particular sound. Some of the recent addition to the musical diary are Blues For Remo, Slow Boat Blues, Call It Done, Play Me The Fool and All Matter Of Minor. 2011 has had me on a vague sort of swing kick and I think I've maybe got one more tune tapping this vain in me and then it's time to find a new kick. I have been playing alot more harmonica both chromatic and diatonic and both seem like old friends once I pick them up, it has been so many years. My guitar chops are not always what they could have been if I only wasn't interested in so many diverse things but I am happy that I can get what is in my head out through my fingers. I have been playing the bass but it's still a butcher on my right hand so I am going easy but I hope to make some recordings of some blues with me walking the strings...
In other realms life is a constant battle to remain in the present and not fear the future. I have not had much good news thus far in 2011 about a reversal of fortunes with my diabetes and all it's complications but I am active in my treatment. Recent diagnosis of a former Hep B infection and steatohepatitis in the present is hard news combined with worsening pain in my legs and feet but things might yet change for the better with the possible addition of a new medication. Only time will tell and it's all I've got to go with.
The new workshop space is coming along but ill health has slowed down the pace of things and barring any further general problems things should pick up in the spring. I am still moving things and slowly going through my extensive collection of wood and materials so that I can find what I want when I want it. The space is a joy to be in and I often enjoy the company of my friend Harrison while getting things sorted.
That is all for now but the future promises to create more fuel for the fire so till then...
at 9:09 PM